I measure my pain in meters, in feet, in
inches. My life is spent measuring the distance it takes for me to go from one
position to the next, and breathing just to remember there is more to life than
space. When you ask me how I am, you do not want to know the truth. You want me
to smile, to tell you I’m fine, and I do, but it is always a lie.
I am
never fine. I am always screaming out my agony in little winces, in the pauses
I take before moving, in the soft sighs I let slip when I know you aren’t
paying attention. Every task has a price; every movement is paid for with cut
glass against my skin. My bones hurt, my body is no longer mine to control, to
command. I am at the whim of a thing no one can see, but I feel it with every
part of me.
My
pain is not me, but I am my pain. It robs me, taking from me my hopes, my
dreams, my passion, my mind. I cannot think past the sharp angles I feel under
my skin.
Most people don't understand that " The Pain " ,is a living thing. Yes... it is mearsured out in inches,feet and yards. "The Pain" breathes too and on bad days... even restricts how deep a breath one can take. Pain has its own color and texture. Pain does things to you. Pain creeps up sometimes after lulling you into thinking that, today would be a day for accomplishing something simple, like making spaghetti... and then leaps,as you stand landing on you so hard the it takes your breath away and leaves you struggling to replace the mask that has briefly slipped away. Pain makes you a prisoner locked within your own mind and eats away at your spirit... The one thing that keeps you from losing your mind. You try to takes its measure... You try to fight back... and you win round after round after round... and those who love you smile at you and think " How nice" ... what no one can grasp is that the battle never ends, the pain doesn't win ( it can never be allowed to win and we know why don't we my dear daughter...we most definately do)... But the pain never surrenders either. Every day is another day of taking our masks and setting them in place and trying NOT to let those WE love know just how difficult the battle is nor how exhausting... THAT is what gets me... winning a round is so to the bone exhausting that it empties you of almost everything. Then,When the wife or sister or brother-in-law come home... you can't tell them how tired you are after their long day at work ... Yeah, I understand how you feel. I know how the pain seems to rob you... how it seems to take away all that you are... but it doesn't . The power of your mind and spirit are evident in the way you put your words together and illuminate what "The Pain" really is... You are what you are and the beast that ravages your ability cannot take away your creative soul... You just showed that ... to the world !
ReplyDeleteStand Tall...
Seconded the above. You have not been completely robbed. You are robbed of seconds, minutes, hours, days...but, not every second. Not every hour, not every day. You just wrote this and it is beautiful. Michelle wins this round and the pain 'lost' this second, this minute, this moment. Well done, you.
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